Cystic fibrosis help pages by country
This page gathers help that organizations in a few countries offer, so you can start from one place.
If you or someone with you is in danger or in crisis now, contact your local emergency number or your CF care team's urgent line. This page is not a crisis service.
Help is listed for 45 countries so far. The list is not complete, and more may be added.
Research, not medical advice
Skip the map and go to the list
Made with Natural Earth. The picture is decorative and does not show borders.
Choose who it is for and what it helps with; the list below follows your choice. If you reload the page, your choices reset.
Showing: ·
No pages listed match these filters. Choose All in one of the two groups to see more.
No pages listed here match these filters.
FIPAN (Asociación Argentina de Lucha contra la Enfermedad Fibroquística del Páncreas)
Argentine national patient association providing guidance on newborn screening, care access, and national legal protections for people with CF.
Resumen en español Asociación nacional en Argentina que brinda orientación sobre pesquisa neonatal, acceso al tratamiento y cobertura legal para personas con fibrosis quística.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Cystic Fibrosis Australia
Where to find your state or territory CF office and the adult, children's and mixed CF clinics near you.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Australia
An overview of daily life with CF and the routines of care.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Australia
Information for families after a CF diagnosis, pointing to state and territory offices, CF clinics and collected resources.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Australia
A CF-specific list of clinical trials by type, with a way to ask about trials that are recruiting.
Check the organization's page for who can use this.
Last checked · checked by screenshot
No pages listed here match these filters.
Instituto Unidos pela Vida
Brazilian institute providing plain-language educational materials, diagnostic center directories, and regional association links for people with CF.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Cystic Fibrosis Canada
A starting page of tools and support on living with CF, treatment options in Canada, connecting with others and finding a clinical trial.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Canada
Information for parents and caregivers on what to expect, further resources, community support and the helpline.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Canada
Information for adults with CF on reproductive health, parenting, nutrition and exercise, and aging with CF.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Canada
A searchable hub of resources on living with CF, with a link to a separate mental health hub and the helpline.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Canada
Lists of CF clinics by province, to help people find their local clinic.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Canada
A pilot of small virtual peer groups for the CF community, with upcoming groups listed and registration.
Check the organization's page for who can use this.
Last checked · checked by screenshot
No pages listed here match these filters.
Corporación para la Fibrosis Quística de Chile
Chilean patient and family corporation offering orientation on public health coverage, respiratory care, and peer community support.
Resumen en español Corporación chilena de pacientes y familias que brinda orientación sobre garantías de salud, cuidado respiratorio y apoyo comunitario.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Chinese Organization for Rare Disorders (蔻德罕见病中心)
Chinese national rare disease organization providing diagnostic orientation, specialist care navigation, and patient community support for families affected by cystic fibrosis.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Fundación Colombiana para Fibrosis Quística
Colombian foundation supporting families and adults with cystic fibrosis through diagnostic navigation, education, and community peer support.
Resumen en español Fundación colombiana que acompaña a familias y adultos con fibrosis quística mediante orientación diagnóstica, educación y apoyo comunitario.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Federación Costarricense de Enfermedades Raras
Costa Rican national federation connecting families living with cystic fibrosis and rare genetic conditions to patient advocacy and peer support.
Resumen en español Federación costarricense que vincula a familias con fibrosis quística y enfermedades poco frecuentes con defensa de derechos y apoyo comunitario.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Fundación Dominicana de Apoyo a la Fibrosis Quística
Dominican foundation offering diagnostic orientation, treatment access advocacy, and family support for children and adults living with cystic fibrosis.
Resumen en español Fundación dominicana que brinda orientación diagnóstica, gestión de acceso al tratamiento y acompañamiento comunitario para familias con fibrosis quística.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Fundación Ecuatoriana de Fibrosis Quística
Ecuadorian foundation offering newborn screening education, respiratory therapy orientation, and community peer support for individuals with CF and families.
Resumen en español Fundación ecuatoriana que ofrece educación sobre pesquisa neonatal, orientación en terapia respiratoria y apoyo comunitario para personas con fibrosis quística.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Middle East Cystic Fibrosis Association
Middle East and North Africa cystic fibrosis network supporting diagnostic sweat testing, multidisciplinary clinical care, and patient education in Egypt.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Addis Ababa University College of Health Sciences
Ethiopian national university health sciences center operating Tikur Anbessa Specialized Hospital with tertiary pediatric pulmonology and genetic care orientation.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Vaincre la Mucoviscidose
French national association providing guidance on specialized CF care centers, social rights, financial assistance, and daily life.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Mukoviszidose e.V.
German federal association offering certified care center directories, social counseling, and everyday guidance for people with CF and families.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Korle Bu Teaching Hospital
Ghanaian national teaching hospital offering tertiary child health clinics, respiratory medicine, and diagnostic referral services for families.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Hellenic Cystic Fibrosis Association
Greek national cystic fibrosis association advocating for treatment access, providing specialized clinic navigation, and supporting patient community welfare.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Cystic Fibrosis Trust India
Indian patient support organization offering diagnostic navigation, respiratory care education, and family counseling for children and adults with CF.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Ikatan Dokter Anak Indonesia (Indonesian Pediatric Society)
Indonesian national pediatric society providing child respiratory health education, clinical referral orientation, and family guidance for chronic and rare pediatric lung conditions.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Cystic Fibrosis Ireland
A hub of guidance and personal stories for adults, young people and parents, with a way to contact member services.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Ireland
How member services help people with CF, including financial supports and information on exercise.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Ireland
Information on state benefits, allowances, tax reliefs and schemes such as warmer homes support for people with CF and their families.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Ireland
A welcome and information for parents of a newly diagnosed baby, with an offer of support when they are ready.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Ireland
Supports for parents of children with CF, including volunteer parents who offer a listening ear and a newborn care pack.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Ireland
A space for young people with CF to learn about CF, staying healthy, hospital stays and moving to adult care.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Ireland
Information on mental health and well-being, including financial help toward counseling for individuals and families.
Check the organization's page for who can use this.
Last checked · checked by screenshot
No pages listed here match these filters.
Lega Italiana Fibrosi Cistica
Italian national association connecting patients and families with regional CF associations, legal rights guidance, and care support.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
難病情報センター (Japan Intractable Diseases Information Center)
Japanese national intractable disease center providing cystic fibrosis diagnostic criteria, clinical management guidance, and public medical subsidy navigation.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Kenyatta National Hospital
Kenyan national teaching and referral hospital offering specialized pediatric pulmonology clinics, diagnostic evaluation, and multidisciplinary care support for families.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Asociación Mexicana de Fibrosis Quística
Explanation of cystic fibrosis in Spanish from a Mexican association, with its warning signs.
Resumen en español Una asociación mexicana explica qué es la fibrosis quística y cuáles son sus signos de alerta.
Check the organization's page for who can use this.
Last checked · a person opened this page
Asociación Mexicana de Fibrosis Quística
A Mexican association's programs for timely diagnosis, specialized care, access to equipment and medicines, and training for health professionals.
Resumen en español Una asociación mexicana presenta sus programas de diagnóstico oportuno, atención especializada, acceso a equipos y medicamentos, y capacitación para profesionales de la salud.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Nederlandse Cystic Fibrosis Stichting
Dutch national foundation offering patient guidance, specialized CF center information, and peer support for people with cystic fibrosis.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Cystic Fibrosis New Zealand
New Zealand national organization offering social work support, practical assistance, and guidance for individuals with CF and their families.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Paediatric Association of Nigeria
Nigerian national pediatric association connecting clinicians and families with child respiratory health guidelines, specialist referral networks, and clinical education.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Norsk Forening for Cystisk Fibrose
Norwegian national association connecting people with CF and relatives through peer support, social rights guidance, and clinical center links.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Aga Khan University Hospital Pakistan
Pakistani academic tertiary medical center providing sweat chloride testing, multidisciplinary pediatric pulmonology care, and nutritional guidance for patients with cystic fibrosis.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Asociación Peruana de Fibrosis Quística (FIQUIPERU)
Peruvian patient and family association providing diagnostic orientation, treatment access advocacy, and community support for people with CF.
Resumen en español Asociación peruana de pacientes y familias que brinda orientación diagnóstica, gestión de acceso al tratamiento y acompañamiento comunitario.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Philippine Society for Orphan Disorders
Philippine rare disease organization connecting individuals and families with multidisciplinary care navigation, newborn screening education, and community support.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Polskie Towarzystwo Walki z Mukowiscydozą
Polish national cystic fibrosis association providing diagnostic orientation, equipment lending, social counseling, and peer support for families.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
King Faisal Specialist Hospital & Research Centre
Saudi national tertiary specialist hospital providing comprehensive cystic fibrosis diagnosis, genetic counseling, advanced pulmonary medicine, and transplant referral care.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
South African Cystic Fibrosis Association
South African national association offering regional support chapters, diagnostic guidance, and clinic directories for individuals and families.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
한국희귀·난치성질환연합회 (Korean Organization for Rare Diseases)
South Korean national rare disease federation offering medical expense assistance, social welfare counseling, and family support for rare genetic disorders.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Federación Española de Fibrosis Quística
National federation of regional CF associations in Spain offering care unit directories, social support guidance, and daily living resources.
Resumen en español Federación nacional de asociaciones regionales en España con directorio de unidades clínicas, orientación social y recursos para la vida diaria.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Lady Ridgeway Hospital for Children
Sri Lankan national tertiary referral children hospital providing specialized pediatric pulmonology clinics, diagnostic services, and multidisciplinary care support for families.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Riksförbundet Cystisk Fibros
Swedish national federation providing educational resources, specialist CF center information, and peer support for patients and families.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Cystische Fibrose Schweiz (CFS)
Swiss national organization offering multilingual social counseling, care center directories, and regional peer support for families and adults.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Kilimanjaro Christian Medical Centre
Tanzanian zonal tertiary referral teaching hospital providing specialized pediatric respiratory evaluation, clinical diagnostics, and multidisciplinary family care orientation.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Thai Rare Disease Foundation (มูลนิธิเพื่อผู้ป่วยโรคหายาก)
Thai national rare disease foundation connecting patients and families with genetic counseling referrals, treatment access advocacy, and peer support networks.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Kistik Fibrozis Yardımlaşma ve Dayanışma Derneği
Turkish cystic fibrosis association connecting families with diagnosis information, treatment access guidance, and national peer solidarity networks.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Cystic Fibrosis Trust
The Trust's starting page for its helpline, financial help, work and education support, travel, disability and life after transplant.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Trust
Confidential support and a listening ear for people with CF and those supporting them, by phone, email or social media messages.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Trust
A guide for parents whose baby has just been diagnosed, from first questions to looking after the baby and themselves.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Trust
Explanations of what CF is, how it is diagnosed and treated and how it affects the body, with FAQs and an Easy Read section.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Trust
Guidance on searching for CF trials, checking who can join, what happens when a trial ends and what to do if none are nearby.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Trust
Information for young people with CF on life after school, the youth program and the Youth Advisory Group.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Trust
Practical topics for looking after your health with CF, including cross-infection, family planning, vaping, weather and neurodiversity.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Trust
Care consensus documents and pages on adult and children's CF centers.
Check the organization's page for who can use this.
Last checked · checked by screenshot
Cystic Fibrosis Trust
Introductory answers to common questions about cystic fibrosis diagnosis, genetics, lung health, daily care routines, and specialist clinical support.
The organization says anyone can use this.
Online
Last checked · checked by screenshot
No pages listed here match these filters.
Cystic Fibrosis Foundation
The Foundation's starting page for help with care, money and daily life.
Check the organization's page for who can use this.
Last checked · a person opened this page
Cystic Fibrosis Foundation
One-to-one help with insurance, costs and practical questions.
Check the organization's page for who can use this.
Last checked · a person opened this page
Cystic Fibrosis Foundation
A page about the costs of living with CF.
Check the organization's page for who can use this.
Last checked · a person opened this page
Cystic Fibrosis Foundation
Starting information for an adult who has just been diagnosed.
Check the organization's page for who can use this.
Last checked · a person opened this page
Cystic Fibrosis Foundation
Guidance for the parents and guardians of a child with CF.
Check the organization's page for who can use this.
Last checked · a person opened this page
Cystic Fibrosis Foundation
A program that connects a person with a peer for one-to-one conversation.
Check the organization's page for who can use this.
Last checked · a person opened this page
Cystic Fibrosis Foundation
A search for accredited CF care centers.
Check the organization's page for who can use this.
Last checked · a person opened this page
Cystic Fibrosis Foundation
A search for studies that are enrolling.
Check the organization's page for who can use this.
Last checked · a person opened this page
Cystic Fibrosis Foundation
The Foundation's page on its work outside the United States.
Check the organization's page for who can use this.
Last checked · a person opened this page
No pages listed here match these filters.
Asociación Honoraria Fibrosis Quística del Uruguay
Uruguayan national patient association providing diagnostic orientation, national treatment coverage guidance, and community support for people with CF.
Resumen en español Asociación nacional uruguaya que brinda orientación diagnóstica, asesoramiento sobre cobertura de tratamiento y acompañamiento comunitario a familias con fibrosis quística.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
No pages listed here match these filters.
Bệnh viện Nhi Trung ương (Vietnam National Children’s Hospital)
Vietnamese national tertiary pediatric referral hospital offering specialized respiratory care, genetic testing navigation, and family guidance for children with rare disorders.
Check the organization's page for who can use this.
Online
Last checked · a person opened this page
Official nonprofit patient and clinical federations providing registry navigation, rare disease legal frameworks, and regional care center networks.
National federation uniting 15 regional CF patient associations across Spain. Maintains accredited clinical unit directories, social work assistance, and lung transplantation advocacy.
National CF patient and caregiver organization in Argentina. Provides comprehensive guidance on National CF Law 27.552, medication access coverage, and diagnostic newborn screening.
National nonprofit foundation dedicated to rare disease registry navigation, newborn diagnostic screening advocacy, and comprehensive community education across Colombia.
Official national patient association in Uruguay providing diagnostic orientation, national treatment coverage guidance through the Fondo Nacional de Recursos, and community support for people with CF.
Ecuadorian national foundation offering newborn screening education, respiratory therapy orientation, and community peer support for individuals with CF and families across Ecuador.
Polish national cystic fibrosis association providing diagnostic orientation, specialized equipment lending, social counseling, and clinical care center navigation for families.
Czech national patient organization offering social and psychological counseling, physiotherapy guidance, and accredited CF clinical center directories across the Czech Republic.
Greek national cystic fibrosis association advocating for treatment access, specialized clinic navigation, and patient community welfare support throughout Greece.
Israeli national foundation providing social assistance, respiratory therapy guidance, and specialist multidisciplinary care center navigation for individuals with CF.
Turkish cystic fibrosis patient solidarity association connecting families with diagnosis information, treatment access guidance, and national peer support networks.
Educational comparator of US FDA approved CFTR modulator regimens, openFDA Structured Product Label (SPL) Boxed Warnings for drug-induced liver injury (DILI), transaminase (ALT/AST) and bilirubin laboratory monitoring intervals, and CYP3A4 interaction guidance. Research, not medical advice.
US Boxed Warning present for drug-induced liver injury (DILI) and acute hepatic failure. Serious cases of acute hepatic failure leading to liver transplantation have been reported.
Research, not medical advice. Independent research from Sensei Ewok CF Lab; not clinical guidance. Regulatory records reflect openFDA Structured Product Labeling (SPL) for NDAs 212273, 218730, 203188, 206038, and 210491. Transaminase monitoring schedules and CYP3A interaction rules are educational summaries; always consult your licensed CF physician and care team before initiating, adjusting, or stopping any medication.
We list pages so they are easier to find. Being listed is not a recommendation, and the order is not a ranking.
We are not part of any organization here and are not paid by any of them. Each organization decides who it can help, so its own page has the last word.
Information changes, so check with the organization and your care team. This is research, not medical advice, and not advice about money or medicines for your situation.
A page is listed when it is a public page of a named organization and is free to view. Each listed page was checked against its description on the date shown beside it. For some, a person opened the page in a browser; for others, the lab's tools loaded it for a screenshot and a person confirmed the row from that. Each row says which.
How places are chosen: cystic fibrosis affects families everywhere, and this list is humanitarian and non-political. Places are added in alphabetical order as we find and verify a public, free-to-view HTTPS page from a local cystic fibrosis organization, rare-disease group, or children's hospital whose site rules allow linking. Place names and codes follow standard technical tables (ISO 3166-1 and Natural Earth) for navigation only, not as a statement on borders, governments, or sovereignty.
Each link opens the organization's own site, which has its own privacy terms and may be in another language.
Spotted a broken link or a mistake? Tell us on the Contact page.
If you want something that is not a list: A letter to people living with CF, and those who care alongside them
Over 130 CFF-accredited care centers; nationwide patient registry (CFFPR) tracking longitudinal outcomes.
Universal newborn screening implemented in all 50 states (IRT/DNA protocols); sweat test confirmation network.
Commercial and public (Medicaid/Medicare) coverage for FDA-approved modulators for eligible genotypes.
CFF Compass personalized case management, peer mentoring, legal rights advocacy, and financial resources.
